Emma ~ Minnie and Chris Hylton
21 December 2006 When
my husband and I found out we were pregnant we were completely happy.
We had a very normal pregnancy with doctor
visits and ultrasounds coming back great! Towards the end of my pregnancy,
between 35-36 weeks, I developed high blood pressure. During my 36 week
check up my doctor sent me to the hospital to have the baby monitored just
to make sure that my blood pressure wasn't affecting her in any way. I was
in the hospital that day for a good three hours and was even visited with a
specialist who wanted to induce that day. They wanted to give the baby a
good week or so before they induced and ordered me to be on bed rest. I
agreed and told them I would behave myself, so I went home and vowed to take
it easy and just laid down the rest of the evening.
The next morning around 4:30 I woke up with something very warm and wet
in between my legs. I assumed it was my water, so I ran to the bathroom and
pulled my pants down to find dark red blood running down my legs. Much to
my surprise this was not amniotic fluid! I called for my husband and he
rushed into the bathroom and he was surprised by all the blood that was on
our floor. We quickly got dressed and he drove me to the hospital. We
rushed into the ER and they paged labor and delivery to come get me. As
soon as the nurse showed up I mentioned to her about the blood and she says,
"Oh that's normal to have some blood in the amniotic fluid." I thought
nothing else...I thought she was right. When we arrived they settled me in
bed with a fetal monitor and the nurses started to do the ivy. They called
my doctor and made sure they were on their way. The baby's heart rate was
dropping and one of the nurses decided that I needed an internal fetal
monitor. They tried to connect one to the babies head and no success...she
did pull her hand out and it was covered in blood. The nurse was alarmed
and yelled to get the doctor back on the phone. I heard many voices in the
room more intensely, they were wondering if the blood was from the baby or
from me. Five minutes later they were telling my husband to change into
surgical clothing and they were wheeling me out of the room. I was
panicked! They weren't telling me anything I began to cry and called out
for my husband. No one was listening. They moved me into OR and everyone
around me was racing around the room yelling and screaming to get NICU on
the phone. The next thing I remember was a mask going over my nose and
mouth. I began to breath in and started to fade slowly....
Two hours later they woke me up in recovery. I was drowsy and very much
in pain. It literally felt like a truck ran over my body hundred times
over. My throat was very sore to later learn that I had a tube down my
throat to help me breath. I had many people around me and I had asked for
my baby and my husband. My husband was with me and he held my hand. The
hospital chaplain was there and my doctor. They were telling me how sorry
they were about what had happened. I couldn't understand what could
possibly be wrong...the chaplain held up photos of our little girl. The
first time I got to see our daughter was on Kodak film. Then our doctor
explained to me what happened and what Vasa Previa was and then explained
what happened to our daughter. She was born without a heart beat and
massive amount of blood loss. They had to perform two transfusions on her
and it took them 10 min to get her heart beating again. She was in critical
condition and her prognosis wasn't good. They wheeled me over to see her in
bed and when we arrived I just couldn't believe how many lines she had
coming out of her body and how they all connected to machines to help her
stay alive. They had her eyes covered and a ventilator was down her
throat. I began to cry and began to think that this wasn't suppose to be
this way. I only got to touch her foot and tell her that I loved her.
They wheeled me to my room and set me up with pain meds. The day she was
born was on 12/21/06. The next day I went to see my little girl again. She
wasn't doing any better, that morning she suffered a seizure and had some
swelling around the brain. Her whole body was swollen from the impact and
her kidneys had suffered the most. The doctor explained to us that due to her
blood loss it affected her kidneys a great deal. They started to shut down
from all the blood loss. And it was only a matter of time for our Emma. I
began to cry over her and held on to her tiny hand.
On Christmas Day I was released from the hospital. That day I was so
reluctant to go home. I had a very hard time leaving her behind. She was
in critical condition still and the doctors of course were telling us that it
still wasn't looking good for her because she hadn't urinated, which was a
sign of kidney failure and renal failure. Later that day when we called to
check in with her and her nurse said that she had urine in her diaper! We
were so excited to receive the news...but it was only the beginning. During
the next few weeks she was urinating blood and she wasn't making enough
urine to relieve the edema (swelling) that was affecting her body. She was
extremely swollen. The doctors had her on various meds to relieve the
swelling and to help her urinate it out. During this time her heart and
lungs were in perfect condition. She was on the ventilator to help her
breath because the swelling was too much for her lungs to handle. She wasn't
on oxygen only on room air. We were their twice a day by her side praying
and holding her hand. Meanwhile, since her little body kept growing from
the swelling the fluid was developing her in abdomen and each day it kept
getting bigger and bigger. It literally looked like a basketball was placed
in her stomach. The doctors grew concerned and performed an ultrasound of her
abdomen to see what the fluid was doing. They found a pocket in her
abdomen where the fluid kept collecting and they had a serious talk with us
to see it would be okay to perform a tap on her. Which means to stick a
needle in her abdomen and drain the fluid from this pocket. They were
hoping it would relieve the pressure off of her kidney's so they can
continue to work. It was a dangerous procedure because they didn't know how
her heart would take the sudden loss of weight due to the fluid. But we
were hopeful and never lost faith. She did fine, they drained 600 cc's of
fluid and she handled it well.
After the procedure she only continued to make progress. Her kidneys
were functioning better and their was good signs of increased urination. 2
weeks later her urine started turning a yellowish color and the blood that
was found in her stool and urine started to diminish. We were so excited.
The Dr's still warned us that she still wasn't out of danger...but we still
didn't loose faith. 2 weeks after that I got to hold our daughter for the
first time and it was the greatest moment in our lives because I never
thought that I would hold her unless something were to happen to her such as
death. I held on to her tightly as she looked up at me. The tears streamed
down my face as my husband leaned over us to kiss us both. The very next
day she didn't need her ventilator anymore. They removed it and she was
doing well off it. I got to see her face for the first time without tubes
in her throat. She was the most beautiful baby I had ever seen. I couldn't
believe how much progress she was making. Neither did the doctors. A week
later they moved her to a different side of the room and she was no longer
considered critical. She still had several of her lines such as pik lines
and ivy's to administer her meds. They were still drawing blood from her
daily to check her blood counts and blood saturation levels. I still was
going to see her two times a day and I held her the whole time I was there.
Telling her how much we loved her and that we would never leave her side. A
couple of days passed and they decided to bottle feed her...she didn't quite
take to it at first but she slowly started latch on. They gave her a
special formula which helps her kidneys (so its not as harsh) and they were
also feeding her through a tube that went into her nose and down to her
stomach only until she got bottle feeding down. Another few days her lines
came off...we were delighted. We got to dress her in her clothes for the
first time. Every nurse in the NICU were developing a relationship with her
and us and they were all so excited to see Emma off of her lines and bottle
feeding. She had come a long way.
Its has been almost 8 weeks since she was born and she still remains in
the NICU and the doctors are giving her days....until she can come home to us.
The only worry now is her feeding. They want her to gain more weight then
she can come home to us. Its a long way from worrying about her making it
to the next day from worrying about her gaining weight. They do see some
brain damage from the loss of oxygen but that is the least of our
worries...we love her anyway and we are glad she is still with us. Only
time will tell for her and so far she has proven a lot of people wrong.
When people were giving us their condolences we never gave up hope that our
little girl was going to make it. We believed in her and her inner strength
and she fought tooth and nail to where she is at today. Even though we
officially haven't brought her home, I know it will be soon. I will keep
everyone updated as best as I can on her progress and when we get to finally
bring our miracle home. |